Insulin Prices: When You Can’t Afford to Stay Alive


A few days ago in Facebook, I posted a link to an article about the rising costs of EpiPens. A T1 friend of mine commented that link that she is pretty much “done” because of the price of insulin. Yesterday, several people posted an article about the rising costs of insulin. My friend shared that link and stated that she can’t afford to stay alive. I told her to promise me that she would go to the hospital when she runs out of insulin.

She sent me a PM that I am sharing here:

Kelly, my life is basically over. I’m coming up on my first bday with out my mom. I have no family. No friends here. I work a job helping others and get shit on for it. I’m not saying I am suicidal, I’m saying I am exhausted, tired, burnt out. I get no help. I never thought that I would be in this position with my insulin. I was the earliest person who went on a insulin pump. I was also the earliest to be put on Humalog when it came out. Nobody in the doc cares. You have a blog, so you have a voice. I’ve talked with people on line about shaking the doc and insulin companies awake and nobody wants to do so, they told me that they are more at ease with begin complacent and apathetic. How sad.

My friend has a job with insurance. However, she has a very high deductible and has to pay 100% of the cost until she meets the deductible. She is out of money and her doctor doesn’t have any samples to give her. I know samples seem to be drying up – my doctor isn’t getting them anymore either. Because she is working, she makes too much money to qualify for any of the prescription assistance programs. She was an only child and both of her parents have died. She has no family to help her.

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United We Stand, Divided We Fall

I have mentioned a couple times about being frustrated with the way the DOC seems to be headed – my last post was on September 1st and talked about that very issue. From posts that I see, I can tell I am not the only one feeling that way. I have felt that I have a major disconnect with the DOC and feel like I am on the outside looking in. As much as I would love to payback the help that I have received, I really don’t want to be on the inside of a community that is heading the direction it is going – and it seems to be getting worse on a daily basis.

A couple weeks ago, I logged into Facebook and saw 3 of my d-friends comment about being frustrated. Pretty sad when November is supposed to be diabetes awareness month and a time that we should rally together and bring attention to our cause. Unfortunately, I feel exactly like they do and I personally have no desire to take part in whatever “festivities” are going on this month because I am not very proud of the DOC at the moment.

Then Sunday night, I logged into Facebook and saw this:

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Diabetes Social Media Burnout: I Have Burnout Big Time

I see mean peopleAlthough this topic is supposed to discuss Diabetes Social Media burnout and give some survival tips, I have no tips to offer because at this point, I am ready to throw in the towel.


I know my frustration is something that I have seen other people discuss also – the number of nasty people out there. Sadly, they seem to be breeding at a very rapid rate. The people that know me know that the past few years have been rough for me – I lost almost 3 years of my life to a foot wound and dealt with a lot of doctors that should not be doctors. I stayed offline a lot during that period. Some of it was because of being sick. Some of it was because I was trying to stay positive and that was hard to do with reading some of the stuff that I was seeing.
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Continuing Connections

Today’s topic for the last day of the Sixth Annual Diabetes Blog Week is:

The very first inspiration for Diabetes Blog Week was to help connect our blogging community, and that continues to be the most important reason it’s held every year.  So let’s help foster and continue those connections as we wrap up another Dblog Week.  Share a link to a new blog you’ve found or a new friend you’ve made.  Or pick a random blog off of the Participant’s List, check it out and share it with us.  Let’s take some time today to make new friends.


I have been reading more blogs this last week than I have done since last year’s Diabetes Blog week.  It is hard to keep up with all of them!  I wrote down links to a few new ones that I have not read before and it is hard to pick just one.

Train Gif
I decided to pick Renza at Diabetogenic.  I especially liked her I think I can, I think I can, I think I can post.


My favorite line out of that post was from a picture Renza used:  “because I am crazy enough to think I can.”  I have a friend that calls me a delusional optimist so that line really resonated with me!

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Favorites and Motivations

Not feeling to great this weekend so I am a day late on yesterday’s post. The topic is (was?):

If you have been blogging for a while, what is your favorite sentence or blogpost that you have ever written? Is it diabetes related or just life related? If you are a new blogger and don’t have a favorite yet, tell us what motivated you to start sharing your story by writing a blog? (Thank you Laddie of Test Guess and Go for suggesting this topic.)

I was debating between two posts of which one to pick and I decided to go with Managing Blood Sugar with Gastroparesis. I picked that one because I still get people sending me messages about it. It is very sad but most doctors tend to write you off when you have a problem and don’t try to help you figure things out.

Salad gifA lot of people don’t really understand that some foods are worse than others to digest and no one has ever talked to them about that. Broccoli and oranges are the two hardest foods to digest and I once talked to someone that was eating broccoli every day with gastroparesis. No one ever bothered to ask her what she was eating.  I miss having my veggies every day but being sick in my stomach every day is not worth it.

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Crazy Stories

I decided to pick one of the wildcards because the actual topic is Food Friday and I eat a pretty boring diet.  The wildcard I picked is:

Diabetes can sure bring some crazy moments.  So tell us your Top 3 craziest D related stories!  If you can’t think of three, don’t worry.  We’re just as happy with one or two . . . .   (Thank you Maria M of My Life: A Long Trip with T1D for this topic.)

The first crazy story I thought of was about one time when I passed out.  I lived in a townhouse at the time and had apparently started screaming and banging on the wall right before passing out.  My neighbor called the police and they ended up getting the manager and coming in to check on me.  I was laying on the floor next to my bed unconscious when they came in.

When I started coming around, I could hear people saying my name and I did not recognize their voices.  I remembered going to bed but did not know what had happened or where I was.  Somehow in my mind, I thought they were there to kill me and I was afraid to say anything!


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