I am participating in Wego Health’s National Health Blog Post Month. I am not using the prompts again today. Today is the last day! Not sure how I mad it with all the
crap stuff going on, but somehow I made it.
I have an appointment to go back to the wound center in Pittsburgh. I wasn’t sure if I had burned my bridges there by sending the letter with all the mistakes in my records. I called the person at the hospital that I had talked to and referred to TuDiabetes. I won’t quote her response, but she was glad that I wanted to come back. She told me that I made her day so that certainly made me feel good. The errors weren’t medical errors, they were errors in my records but the electronic records concern me that someone will see those and they spread.
She told me that they were finished with the corrections but one doctor forgot to sign his so she had sent it back to get his signature on. She said both doctors agreed with everything I stated except the one that called me old. He would not change one thing. My gut tells me that it is the old comment but I will wait to see the report. They had on there that I was allergic to Xanax and I never used that drug. Apparently, he dictated latex but the transcriptionist heard Latex. I haven’t looked too deep into the correction process yet to know if I am allowed to “disagree” with his refusal to correct something.
She said that when I go next week, she would like to come over and meet me and will go over the papers then. That will be nice to meet another d-person for a change even if it isn’t technically a d-meet up!
The other day, I wrote about the doctor I was seeing for my foot lying to me about several things. I usually just walk away when I am frustrated with a doctor but decided that when I sent the letter requesting my records, I would say why I was changing doctors. I don’t expect it to do any good, but I think sending it will help me. It was hard to write because I didn’t want to say “you lied” but I wanted to get my point across. Here is the letter that I sent to him:
I have decided that it would be in my best interest to seek treatment elsewhere. I need to get my records from you.
I very much appreciate the fact that you have been very aggressive with ordering needed tests to rule out osteomyelitis. After yesterday’s appointment, I don’t feel that you are using that same aggressiveness with treatment options.
The Aqua Cell is NOT working. When we talked on the 16th, you said you wanted to wait until my next appointment. I was willing to wait one more appointment. When I brought it up again yesterday, you then wanted to check and see what my supplier carried. I want something that is going to work and I could care less what they carry. I told you that I live within walking distance of X Supply Place and they would probably be willing to order something for me but yet I left without a script for something different. You won’t there be there when I could come back in again so that means at least three more weeks without a script for something new. As far as I am concerned, the next time I take the trash out, the remaining Aqua Cell is going in the dumpster because it is worthless.
I learned the hard way with what I went thru before what happens when wounds are not treated aggressively. In fact, when I went to the wound center in Pittsburgh the first time, two different doctors discussed the need to be very aggressive.
When you discussed my seeing Dr. C, you said it was to see if he could recommend doing something we haven’t tried yet. When I pulled the script out of my purse this morning, you wrote on the script a 2nd opinion for a sub or total calcanectomy.
I do NOT want a calcanectomy. I want to save 100% of what I have left of my foot. Based on the fact that you would not give me a script for something different and I was handed a referral to get an opinion on a calcanectomy, I do not believe that you want to save my foot.
If I am wrong about that, I apologize but I am not accepting anything less than being aggressive in treatment options to SAVE my foot. I will do whatever I need to do to save my foot but I am not doing a calcanectomy, partial or otherwise. I need a doctor that wants to save my foot and be aggressive in treatment options to do that.
Please visit Wego Health’s National Health Blog Post Month Facebook page to read other activist’s posts.