A few days ago in Facebook, I posted a link to an article about the rising costs of EpiPens. A T1 friend of mine commented that link that she is pretty much “done” because of the price of insulin. Yesterday, several people posted an article about the rising costs of insulin. My friend shared that link and stated that she can’t afford to stay alive. I told her to promise me that she would go to the hospital when she runs out of insulin.
She sent me a PM that I am sharing here:
Kelly, my life is basically over. I’m coming up on my first bday with out my mom. I have no family. No friends here. I work a job helping others and get shit on for it. I’m not saying I am suicidal, I’m saying I am exhausted, tired, burnt out. I get no help. I never thought that I would be in this position with my insulin. I was the earliest person who went on a insulin pump. I was also the earliest to be put on Humalog when it came out. Nobody in the doc cares. You have a blog, so you have a voice. I’ve talked with people on line about shaking the doc and insulin companies awake and nobody wants to do so, they told me that they are more at ease with begin complacent and apathetic. How sad.
My friend has a job with insurance. However, she has a very high deductible and has to pay 100% of the cost until she meets the deductible. She is out of money and her doctor doesn’t have any samples to give her. I know samples seem to be drying up – my doctor isn’t getting them anymore either. Because she is working, she makes too much money to qualify for any of the prescription assistance programs. She was an only child and both of her parents have died. She has no family to help her.