Accomplishments Big and Small: Huge for Me!

Today’s topic for the 4th Annual Diabetes Blog Week is:

Diabetes Blog Week 2013We don’t always realize it, but each one of us had come a long way since diabetes first came into our life. It doesn’t matter if it’s been 5 weeks, 5 years or 50 years, you’ve done something outstanding diabetes-wise. So today let’s share the greatest accomplishment you’ve made in terms of dealing with your (or your loved one’s) diabetes. No accomplishment is too big or too small – think about self-acceptance, something you’ve mastered (pump / exercise / diet / etc.), making a tough care decision (finding a new endo or support group / choosing to use or not use a technology / etc.).

I didn’t have to think very hard about this one. I wrote about it last December! In 2005, I applied for disability because of neuropathy. I have no feeling in my feet and my balance is bad so I have to use a walker to walk. I have both peripheral and autonomic neuropathy. In 2006, I had a wound on my foot and the doctor decided to put stitches in it. Since I had no feeling, they did not need to numb my foot and I didn’t feel a thing.

Being on disability also gave me the time to get online and I found the DOC at the end of 2006. I was coming up on my 23rd diaversary and learned a ton of things that I did not know. One huge thing that I learned was that I did not need to take all my insulin for a meal at the same time. That “novel” idea is what really helped me manage the blood sugar swings from gastroparesis and get my blood sugar in control.

[Read more...]

My Most Memorable Diabetes Day

Diabetes Blog Week 2013Today’s topic for the 4th Annual Diabetes Blog Week is:

Today we’re going to share our most memorable diabetes day. You can take this anywhere…. your or your loved one’s diagnosis, a bad low, a bad high, a big success, any day that you’d like to share.

 My first thought was to write about the time that I woke up to EMTs over me then decided not to. Instead, I decided to write about the day that I started insulin back in 1984. I have had some really bad experiences with doctors this last year and that day back in 1984 is a very good reminder that there really are good doctors out there.

At the time, I worked in DC and went to see a doctor within walking distance from my office. He was an internist but one of his partners was actually an endo so I got lucky when referred to his office by a co-worker. He suggested putting me in the hospital but I really didn’t want to do that. I guess I hated hospitals even back then!

I went to his office to be started on insulin. I was very upset that morning. The nurse was supposed to give me my first shot of insulin and although she managed to get me calmed down, my being in tears made her upset. By the time she got me calmed down, she didn’t want to give me the shot without my talking to the doctor. Unfortunately, the doctor had an emergency at the hospital that morning and was not in the office. She put me back out in the waiting room until he got back from the hospital.

[Read more...]

We The Undersigned Want All Medical People Treating Diabetics Be Required To …

Diabetes Blog WeekToday’s topic for the 4th Annual Diabetes Blog Week is:

 Recently various petitions have been circulating the Diabetes Online Community, so today let’s pretend to write our own. Tell us who you would write the petition to – a person, an organization, even an object (animate or inanimate) – get creative!! What are you trying to change and what have you experienced that makes you want this change?

 

This was an easy one for me. My full title would be: We The Undersigned Want All Medical People Treating Diabetics Be Required To Participate in Social Media For At Lease One Week Per Year.

Last fall, I participated in a meeting where we had a CDE come to where I live to talk about diabetes. There were a few things that she said that were wrong. One thing was that only Type 2s could use Byetta. I knew that wasn’t true from things I have read in the DOC. When I spoke up, I really don’t think she believed me that Type 1s also use Byetta!

[Read more...]

Share and Don’t Share

Diabetes Blog Week 2013This is the first day of the 4th Annual Diabetes Blog Week. Today’s topic is:

“Often our health care team only sees us for about 15 minutes several times a year, and they might not have a sense of what our lives are really like. Today, let’s pretend our medical team is reading our blogs. What do you wish they could see about your and/or your loved one’s daily life with diabetes? On the other hand, what do you hope they don’t see?”

That is a hard one. I don’t mind sharing with the DOC because they get it. I guess what I wish they could see is that good blood sugar control isn’t as simple as eating right and taking x amount of insulin (or oral meds for T2s). So many things mess up are BS but a lot of medical people don’t seem to understand that. What I wish that they could see is that I can do the same exact thing 10 different times and get 10 different results. Since last fall, I have been dealing with an infection and have had some whacky blood sugar. I would like them to see that just because I have whacky blood sugar doesn’t mean I am not working hard to try to keep my blood sugar in a good range.

[Read more...]

What Happened to Ethics in Medicine?

I am starting to think that is a lost art! I was actually planning on writing on this very topic because of something else that happened to me last week then my mail came on Saturday. Every time you think that you have seen it all, you find out you were wrong and you haven’t seen it all yet!

Last month, I wrote, “Fact Versus Fiction in Medical Records” after I got my records from Ohio Valley General Hospital Wound Center. In those records, the doctor stated that I was started on a lower dose of Vancomycin that he actually started me on. I sent a letter to Ohio Valley with a list of corrections to those records. I also included a copy of the script showing my starting dose for Vancomycin. The letter I received on Saturday was a form letter stating that my records that I want amended are “accurate and complete.” You can view the whole letter here.  Once the letter opens, you have to click on it to enlarge it.

.

[Read more...]