I would tell newly diagnosed patients to get involved in the diabetes online community (DOC). You can learn a lot by talking to other people. I have seen a lot of newly diagnosed patients come to a message board and talk about something going on with their diabetes. They will say that their doctor never heard of that before when it is something very common with diabetics. One big misconception with diabetes is when someone is honeymooning – their body starts producing more insulin for a short period of time. That is pretty common, but sadly, a lot of doctors out there don’t seem to realize that or even know the term.
A doctor only has a short amount of time to spend with you and there are a lot of little things you might not realize. Things that a lot of us take for granted that they think “everyone” knows, a newly diagnosed person won’t necessarily know that. In one of the groups I belong to, there was a grandmother that read someone’s comment and asked a question. Her daughter had been told to throw her grandchild’s insulin pens away after 30 days. They did not realize that meant the pen they were using and they literally threw away the whole box of pens! She said the child was only using a small amount of insulin so they were literally throwing 4 unused pens away each month.